Supporting Persons with Disabilities through the Holidays

A guide for parents, grandparents, and friends to use while supporting persons with disabilities through this season of celebration and change.

Note: Because this blog post was such a helpful resource for many individuals last holiday season, we wanted to share it with you again as you walk through the next few weeks of holiday festivities.

Brothers at ChristmasWhile the holidays often bring up those Hallmark memories for many of us, for some children and adults with disabilities, holidays signal an intense time of stress and distress. Often communicated with significant behavior changes, the underlying message might be “I’m overwhelmed”, “You changed my schedule”, “Why did you put a tree in our living room”, “There are too many people stuffed into this room”, or “I am on complete sensory overload”. While all of these ideas won’t work for everyone, here are some ideas for you to try to create a positive time of celebration for each family member.

1. Who needs to know? Many times extended families get together, and yet cousins or friends may not really understand the individual with the disability. It might be helpful for parents or the person with the disability to send out a quick update to family members prior to an event.  This update could include:

    •  “How Brent has grown this year”
    • “Activities and topics Brent enjoys doing or discussing”
    • “Activities and topics to avoid with Brent”
    • “Some things that Brent may really enjoy when we gather for Christmas”
    • “Some things that might be challenging for Brent at our Christmas celebration”
    • “Some gifts Brent might enjoy receiving”
    • “Some gifts to avoid”

      Christmas cookies
      Photo credit: chadmagiera http://flic.kr/p/5N2cD8

2.   “It is better to give than to receive” – and many times we think our family member with a disability should only be the recipient of gifts, and not the giver. How can that person use an area of interest or gifting to provide something for others? Would it be the gift of a dance or song? Could that individual provide the cookies for dessert? Might that person enjoy a trip to a dollar store to pick out something for each guest or family member? What about a wall decoration or a note card for each guest with a favorite picture of an animal or area of interest? Find a way for that individual to also receive the joy of giving.

3.   Prepare in advance a way your family member can participate in the holiday traditions. Be creative. Think of ways you have made the holiday meaningful and consider ways your family member with a disability may be involved. Some ideas you could try include:

Do you collect prayer requests or notes indicating things for which each family member is thankful to incorporate into the celebration? How might that family member participate? Would it be helpful to have pictures of familiar items so that the individual can point to or pick up the prayer request and hand it to the one praying?

How about singing? Could you have a colorful streamer or small rhythm instrument available so that a person without words could participate with movement?

How about programming a portion of Luke 2 on an iPad or other device so that pushing a button will allow an individual to read a portion of the Bible? Adding figures or using the manger scene on the mantel may be a way for an individual to better understand or even help move or tell the Christmas story.

Christmas scrapbook page
Create a Christmas album! Photo Credit: Dolce_Evita

4.   Use photos. Find some pictures of the celebration from last year. If it will be similar, put together a photo album or story of that event so that the individual can remember it in pictures and written words prior to attending a similar event this year.

5.   Put together a schedule of events for your party. Whether in words and/or pictures, let the person know the planned order. Some individuals enjoy crossing off or removing the individual schedule items as they are completed.

I love using the Choiceworks app, as it’s an amazing way to quickly turn an iPad or phone into a schedule. The app suggests the next activity and when the task is done, the user can sweep it to the “done” side of the board. In addition to the schedule board, there are also boards for feelings and waiting.

6.   Visit the room ahead of time. Many times we redecorate or rearrange rooms to fit more people. Consider setting it up a day ahead and visiting that room without people in it. Let the individual explore the changes without the added stress of people. Perhaps leave something on a chair or in a certain place so that you can “reserve a spot” for the event when you arrive. The individual will know to find that space or item to make a more comfortable entry.

Child photographer
Photo Credit: Threelfbybike

7.   Give that individual a “job” to do. Perhaps they could be the photographer, back massager, coffee or beverage server, greeter (be the first to arrive and assimilate guests more slowly – often a better choice for some persons), or card distributer. Many times, a helping role will not only use the gifts of an individual, but it gives the person a clear sense of what to do in that environment.

8.   Designate a “safe zone”. It might be helpful to show that family member a quiet and designated space in the home or building where there would be a calming and preferred activity. It might be a mini tramp, rocking chair, a favorite book, or quiet classical music in a more isolated space where one might be able to find a refuge if the senses get overloaded.

 

Some other posts you might like:

Christmas Gifts that Promote Child Development

Sharing the Christmas Story with Kids with Disabilities

Sharing Jesus with a Child with Down Syndrome 

 

photo credit: jeffsmallwood via photopin cc

 

Barbara J. Newman photoBarbara J. Newman is a church and school consultant at CLC Network and a special education teacher at Zeeland Christian School. She is the author of numerous books. She is a frequent national speaker at educational conferences and churches.

Comments

Karen Roberts - Chicago

Hi,
Thank you so much for providing these two posts. Each month Joni and Friends Chicago sends out an electronic Through the Roof Newsletter which goes to our Family Retreat families, volunteers and church disability ministry leaders. Would it be possible for me to provide a link to these posts in the Newsletter? I would love to make it available to them. Please let me know. I hope to send it out by Friday afternoon.
Blessings,
Karen

Dr. Karen Roberts
Academic Studies and Church Relations Manager, Chicago
Joni and Friends International Disability Center
Office: 630-573-2900 Fax: 630-573-2907
http://www.joniandfriends.org/chicago [Facebook-Icon] [cid:image002.gif@01CC30F5.4464CFC0] [cid:image003.gif@01CC30F5.4464CFC0]
“May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit.” ~Romans 15:13

    CLC Network

    Absolutely! We would love to share any resources from this blog with others!

Sharing the Christmas Story with Kids with Disabilities | Making Us Whole

[…] Barbara J. Newman is a church and school consultant for CLC Network and a special education teacher at Zeeland Christian School. She is the author of numerous books, including her latest Nuts and Bolts of Inclusive Education. She is a frequent national speaker at educational conferences and churches. Check out Barbara’s guide for supporting persons with disabilities through the holidays. […]

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[…] Supporting Persons with Disabilities through the Holidays. […]

Christmas Gifts that Promote Child Development | Making Us Whole

[…] as active, integrated members of their communities. If you found these ideas helpful, check out our Holiday Guide for Supporting Persons with Disabilities and a fun activity for sharing the birth of Jesus with friends with […]

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[…] Barbara J. Newman is a teacher consultant and the director of church services for CLC Network. Some of her previous posts include Sharing Jesus with a Child with Down Syndrome, Sharing the Christmas Story with Kids with Disabilities, and Supporting Persons with Disabilities Through the Holidays. […]

Beth

Wonderful post and excellent ideas! We will definitely be using some of these during the holidays…I especially like the emailing out an update to those you will be seeing during the holidays. Thank you!

    CLC Network

    Glad this article was helpful for you, Beth!

    Blessings!
    Katie @ CLC Network

jolenephilo

These are such practical and doable ideas. All that’s needed is a little forethought. Thanks for adding this to the DifferentDream.com Tuesday link up.

mccharness

Here is a response from another Beth! I just reposted this on the Facebook page of Parents of Ill or Pregnant Students. I love your stuff.

    CLC Network

    Thank you, Beth, for sharing this with parents on your Facebook page. We appreciate your advocacy and support!

    Katie @ CLC Network

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[…] Supporting Persons with Disabilities through the Holidays […]

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